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Tysabri tomorrow!

So things have moved forward quickly on the Tysabri front! I got a call from my insurance Tuesday along with the call from the Biogen people, and yesterday the Hateful Shrew called to give me the number to the infusion center and tell me to make an appointment. And no sooner did I get that call (and run around my company's office building for 6 hours of meetings, all in different rooms) that the infusion center themselves called! I missed that call too, somehow, but when I got home from work I called the Biogen people back and answered their questions and then called the infusion center and, lo and behold!, they had an appointment on Friday at 8:30 in the ay em.

So tomorrow I go in bright and early to get pumped full of The Green Goo that is Tysabri. (Actually, I know it's clear. It's just that the stuff has such a persona of its own that I imagine it as being a sort of fluorescent green goo. I don't know why... Perhaps because I am insane. Hard to say.)

ANYWAY...just wanted to give an update on the MS front and tell ya that I'll tell you all more tomorrow after the appointment! Now I just have to figure out what I'm going to do while I'm sitting there for two hours: read a book? Play Ms. Pac-Man on my cell phone? Sleep? Maybe I'll just take a crossword and hope for the best...


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

MS Blogs & Websites

Portland and Northwest-area MS Resources

MS Resources

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