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Green Light

So I got a call from my health insurance today, letting me know that my Tysabri had been pre-approved. I spoke with my insurance folks for a while because, as an infused treatment, Tysabri is paid for out of my medical insurance benefit rather than my prescription medication benefit and I wasn't sure what that meant for my out-of-pocket costs. What I found out was this: it means a whopping $500 out of my pocket each year for this treatment... Guess I know now where my "economic stimulus" check is going: to stimulate Biogen's coffers. Sigh.

Still, I am grateful to have insurance that covers the majority of the cost; it really is a blessing and something I am mindful of whenever I look at my Explanation of Benefits statements my insurance sends. And I'm gratefuI that, as a result, I get to take advantage of this new, more effective medication!

Anyway, I also received a call today from the Biogen Idec people ("at the request of my doctor") to, I assume, schedule my first infusion. I didn't actually talk to these folks because my cell phone was turned to "silent" and I missed the call. However, I will call them back on Thursday (in back to back meetings all day tomorrow) and hopefully I'll get my first infusion within the next 30 days!

Stay tuned - I'll let ya'll know how it goes...

Comments

Best to you as you venture down the Tysabri highway! I do hope all goes well for you and keep us ALL posted!

Linda D.in Seattle

considering the fact that, at least in my case, each infusion costs about $8,500, paying $500 a year out of pocket ain't too bad.

considering that the "real" cost of tysabri is like $20,000 a year, i'd say that $500 is a bargain! that's less than $50 a month, and less than my cell phone plan. i thought i'd have to pay much much more.

my first tysabri infusion is next tuesday. i'm very excited to get started.


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

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