« A New Year and New Hope | Main | Let the Rejoicing Begin! »

Restarting the Copaxone...

Well, in the ongoing saga of my battle against depression, I have finally made contact with the people at my psychiatrist's office! Huzzah! Triumph!

Or so I thought. I actually only talked to the receptionist, but my psychiatrist actually called me Friday while I was napping (so of course I missed the call) and when I called back this morning I gave the receptionist/assistant guy who answered the phone a brief run-down of my deepest needs, wants and desires as regards my mental health.

That list includes:
a) A recommendation from my psychiatrist as to the anti-depressant dosage(s) I should be taking while on Copaxone, and
b) To have my psychiatrist contact my neurologist to talk about my mental health: because my being in the middle trying to get things accomplished clearly isn't doing much good...

I meet with my shrink again on Saturday and my neurologist at the end of the month and, God willing, they'll have talked to each other by then and come up with a plan of some kind that meets my ultimate needs, which involve:
a) Not being depressed, and
b) Not having an MS relapse.

I know, I'm so demanding!

So, as the title of this post indicates, now that phone-tag appears to have commenced, I am going to start taking the Copaxone again this evening. The last couple weeks of clear-thinking and increasing interest in my life have been nice (not to mention the lack of itchy welts!), though, I have to say. But, unfortunately, today I noticed some mild MS-y twinges creeping back: like, my left foot is suddenly ice cold, and I had some "sparks" shooting down my left arm intermittently throughout the day. (I don't know how to describe this to people who don't have MS - but it's like a quick electrical pulse zapping through your arm...)

So this is not good but, on the upside, seems to indicate that the Copaxone was working on keeping my MS at bay on some level.

So that's where I'm at today with all the fun mental and physical health stuff. In other news:
-- I got sick Friday afternoon - as in fever and vomiting and nausea sick - and ended up in bed all weekend. This, unfortunately, meant that I had to cancel my planned day trip to the beach with a friend. Said friend did, however, come by on Saturday evening, and brought Saltine crackers and made me soup and watched movies with me. Still, hanging out with anyone when you're sick isn't exactly the ideal thing to do, but it was nice to have someone take care of me. I'm still not feeling great - still a bit nauseated - but I feel ok enough to eat regular food again and work a full day.

It's amazing to me how hard I find it to let someone care for me. What's up with that?? I mean, am I worried someone else might heat up a can of soup incorrectly? Or not put things away in the right way? As it turns out, he did fine but I think I might need to examine this control-freak thing a bit closer.

-- On New Year's day I went and saw I Am Legend at the Cinetopia Theater in Vancouver, Wa. I had never been there before - in fact, I'd never even heard of the place - but it is now my very favorite place to go see movies. It is basically a luxury movie theater that has a restaurant attached to it. You can eat at the restaurant before your movie or order dinner from your seats before the movie starts and they bring it to you when it's ready. They'll even go and fetch something from the concession stand or get you a soda... (For this service they add 15% gratuity automatically.)

The theaters themselves sport beautiful leather chairs with lots of leg room and ottomans for resting your feet and several of the theaters are 21+-only, which is nice if you want to have a screaming-child-free movie viewing experience. This was one of the nicest in-the-theater movie-going experiences I think I've ever had. The food, too, was good and the staff very pleasant and helpful. As you might expect, the prices there are a bit higher than you'd find at a regular theater, but for the movies I really want to see on the big screen, I will be going back. (It is probably a good thing, however, that the place is a 30 minute drive away!)

I thought I Am Legend was great. In fact, there was one scene involving the dog and a Bob Marley song that prompted me to sob all the way home. I love that an action-suspense flick can have some tender, heart-breaking moments as well. So I recommend it if you're not averse to a moderate bit of violence.

Has anyone seen Atonement yet? At first glance it seems like it could be right up my alley and it seems to be getting good reviews; this might be my next in-theater film.

Comments

That scene with the dog got me too -- I sort of knew it would happen, but still!!

Atonement is next on my "to see" list.

Hope you find some solutions for your medical complications !!

I heard once that the strength of a person is measured not by what you are willing to do for others, but what you are willing to let others do for you.

Can we go see Atonement together pretty please?

Good for you on "encouraging" your providers to talk to one another...somehow it seems, they all LOST this basic concept in med school. Sorry to hear you've been down with the crud...hopefully on the mend?

Linda D. in Seattle


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

MS Blogs & Websites

Portland and Northwest-area MS Resources

MS Resources



Subscribe!





Search

Creative Commons License
This weblog is licensed under a Creative Commons License.
Powered by
Movable Type 3.2

Powered by FeedBurner