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Off to see the Neurologist!

The wonderful Neurologist of Ozzzz.....

Wait, wrong musical.

Anyway... tomorrow is my long-anticipated appointment with my neurologist wherein I get to have a neurological test and be told that things haven't changed at all (yay! I think?). All that is neither here nor there. My MS feels fairly stable and aside from the ever-present sensitivity issues that - at this point - are unlikely to go away, I am feeling good these days. Even the Copaxone has settled down to the point that I no longer have much trouble with injection site reactions. (Good gravy, people: I've been on Copaxone for three months now!! When did THAT happen?)

I'm taking my mom with me to the appointment tomorrow, along with that letter sent by the lovely and talented scheduling secretary requesting I send her a check for $25.

Yes, the very same $25 she charged me for DOING HER JOB. (She even included the doctor's tax ID number on the letter, though I am not sure why - was I supposed to put that tax number on the check?)

That was back in August and I still have not paid it and have yet to see another bill for it. My guess is - if the doctor talks to her about it at all - she'll justify charging me because she copied and sent me 10 pieces of paper out of my file. However, I'd only requested the ONE piece of paper that contained the results of my most recent blood test on it, and the whole thing would have been avoided in the first place if the doctor himself had just called to talk with me about the results.

But hey, who's harboring a resentment??

Anyway, mi madre is quite skilled at talking to the doctors and nurses and insurance people, whereas I tend to back down even in the face of the stupidest excuse or explanation. I don't know why I do this, but I am just terrible at being my own advocate in situations like this. Anyway, so I'm quite grateful my mom is willing to come with me tomorrow.

Meanwhile, it is a crazy-ass week from hell and, for reasons I don't entirely understand, both my legs are just aching tonight. I know that not everything is MS, but I have no other explanation for my legs being sore and achey down to the bones. It's certainly not from getting a lot of exercise. (HAHAHA! So funny...) So I'm hoping that a good night's sleep will take care of it...

I'll be back tomorrow with - no doubt - wild tales to tell about the neurologist's take on The Letter and The Fee and how my mom smacked him down to size. I can't wait to see how all this unfolds... (Insert evil cackle here.)

Comments

I hear you about that self-advocacy stuff...I can advocate for patients in a court room no less, but when it comes to sticking up for myself in the simplest of terms, I suck!

Glad the mum is going to bare her fangs for her young! Anxiously awaiting THIS outcome...*insert evil laugh here, too*!

(and I didn't even use that "p" word this time, so this comment should post!)

Linda D. in Seattle

Have fun in the world of Oz, oh sorry I mean at the doctor's office . . . can't wait to hear the tales!


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

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