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Happy (?) Anniversary

I'm too tired to write much now, because I've just returned from the Oregon coast, where it was clear and sunny and beautiful but thankfully not too warm. In short, it was a perfect day to go to the ocean and I have many tales to regale you all with as well as pictures of everyone's favorite Yorkshire Terrier.

Here's a little teaser:
A girl and her dog

However, as today is the 1-year anniversary of my Multiple Sclerosis diagnosis, I felt I must mark it in some way. I have written at length about my own experience during my first year after being diagnosed with this disease so I'm not going to write any more about that lest I lose all my audience.

Instead, I want to point ya'll to this series of videos on YouTube about Jacqueline Du Pre, the fabulously gifted and famous British cellist who was diagnosed with Multiple Sclerosis at age 28 and died 14 years later in 1987 at the age of 42. I was reminded of this brilliant woman on Tuesday when I had dinner with my friend Rob (a cellist, naturally) and she's been on my mind.

This documentary/video is in about 8 parts on YouTube, but the first part is below, in the extended entry. The Elgar concerto is exquisite and despite the toll MS ultimately took on Du Pre, what she gave us with this concerto - and many other works - is nothing short of genius. In light of this, I continue to hope and pray for continued research leading to a cure.

Comments

How did I miss this beautiful piece and the equally beautiful young musician who played it. Thank you for the story, Lindsey. I'm glad that the beach day turned out to be so good for you. Being at the sea always makes me somehow melancholy even while i'm so pleased to be there. I never tire of hearing the waves come endlessly onto the shore.
Hope to see you today.

Love, maryo

Awesome photos - I'm so jealous, it's been raining here for over a week straight!!


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

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