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A Bit of a Break. Maybe.

So. I'm done with work for the day and ready to get started doing more homework. Only I'm dragging my feet and whining to myself, "But I DON'T WANNNNNNNNNTT TO!" just as I'm playing a few tunes on the Chickering, catching up on blog posts and chasing Rennie around the couch trying to grab her stuffed rabbit.

My life? It's exciting.

Beginning tomorrow, I have five days in a row off. I'd originally planned to take the time off to do homework and get my course project finalized, but I am starting to feel the way I felt right before my last MS relapse: completely and utterly exhausted. So exhausted that watching 24 would make me MORE tired, so Monday's episode is still sitting on the Tivo, waiting for me to turn it on. So exhausted that my ability to think clearly is impaired a bit; I have a rather scary lack of focus, as well. This morning, for example, I poured coffee in my cereal which was disconcerting because it was both disgusting and a waste of perfectly good Stumptown coffee AND Froot Loops.

I tell ya, this multiple sclerosis thing sure is the pits sometimes! I don't think it's that I'm just not getting enough sleep because, after realizing how I've been getting progressively more and more tired over the last few weeks, I have made a concerted effort to get to bed on time and get more sleep. The problem is, this is the kind of fatigue which isn't helped by more sleep. So I'm not sure what to do other than take it easy, get a lot of rest and eat as heathily as possible.

So although tomorrow's plan originally involved spending all day finishing up my final project, it may also involve sleeping in and a nap smack in the middle of the day. The good news, however, is that I did a few calculations and it turns out that I don't have to turn in all of my assignments for the rest of the term to get an A. I have to do most of them, yes, but I can skip one or two and not even drop a grade! This is good news considering I get to the point, sometimes, where thinking is just no longer an option. Sometimes having the luxury of not doing something is a nice ace to have in my back pocket.

So this weekend is that of rest and kicking Mr. MS' rear-end. Speaking of MS, though: I still have not heard from my doctor on the results of my last blood draw. He shall be getting a call from me tomorrow as well!

Comments

Advice is sooo easy to give, but harder to live...but I will indulge myself in the advice-giving arena anyway!

TAKE IT EASY AND REST...I for one, often turn a deaf ear to my body's signals, only to pay the high price later. It will cost you less to listen NOW, because "body bankruptcy" is a bitch...trust me, I know. LOL

Linda D. in Seattle


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

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