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Well, Phooey

Here I thought I was done with the stupid Avonex-related side effects. But noooooooo, I had to go and monkey with my routine! Sheesh.

This morning, I got up around 11:30 with a splitting headache. I wasn't sure whether this was my typical early-migraine headache or a "been too long without caffeine" headache, so I split the difference and brewed a pot of coffee and popped a couple Excedrin (The Headache Medicine!). That took care of the headache in short order.

Around 12:30 or so, I decided that I needed to get dressed because a friend was coming over to visit. So, as part of that getting ready I went ahead and gave myself my Avonex injection.

Usually, I take a couple advil, wait 30 minutes, and then give myself an injection. Then, 60 miinutes after that, I take two more Advil. This is what the nurse had instructed me to do and I've found that, when I've not taken the advil prior to the injection, stabbing myself with a needle hurts a LOT more. So, I thought, I've taken a couple pills already and I don't want to take a couple more on top of that, so I'll just see if the Excedrin works.

Well, it did. For a while. The injection wasn't painful and I felt fine for most of the afternoon. Right now, though, I'm starting to feel headachey and my body feels just yucky all over. Guess what, I forgot to take the 2 Advil an hour after my shot.

So the lesson in all this is, don't mess with a good thing: I typically take my shot around 4:30 or so in the afternoon and I guess I've learned that I still experience the side effects, it's just that they occur 8 - 10 hours after the injection, which is usually while I'm asleep. Next week: I'm going back to the 4:30 pm injection!

Right now, though, I'm going to bed so I can try to sleep off this awful headache. Yuck.

Comments

sorry 2 hear, just be really happy you were not flying with me!!


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

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