Brain/Body Drain
Today was one of those days where I've just been completely wiped out, all. day. I've been waking up around 7 or 7:30 every morning feeling happy and rested and that has generally lasted until I've gotten to the hospital for my IV treatments. After that the energy level drops and I feel a bit woozy. But by later in the afternoon I'm starting to perk up again and feel a bit better.
Not so, today. When I got up this morning I felt pretty good, but that quickly faded as the morning wore on and by the time I got into my car I felt like I'd been run over by a semi-truck. Charming. I did manage to drive to the hospital and get my last treatment, but I did basically nothing while I was there but drink Sierra Mist and try to ignore the nasty taste in my mouth from the steroid. Also, I might have dreamed this, but I swear I heard someone watching Mister Rogers' Neighborhood in another room. I'm sure I saw no children in the place when I came in, but I'm not even going to try to explain that one.
Anyway, I got home around 2:30, did a little bit of work and a couple loads of laundry and then just crashed. Fran came by for a bit and we had those yummy Marie Callendar's Chicken Pot Pies and chatted for a bit. Still, I ended up skipping one of my favorite meetings because I just could not even get up the energy to drag myself to the car.
I am just So. TIRED. I don't even know how to begin to explain it. I swear, the balance issues, the numbness and tingling and the frustration at the slow recovery process is nothing compared to this fatigue. I hope this is something that I don't have to deal with often!!
Despite the disappointment at missing one of my favorite meetings, I'm still feeling generally upbeat and trying to remain positive. I'm not looking forward to the MRI on Thursday but I am looking forward to meeting with my doctor again and mapping out a course of action. I've always been better-able to cope - with anything, really - when I've had a plan. I don't expect this piece of my life to be any different.
It's just awfully hard to create and execute on a plan when you don't know if you're going to have the energy to get out of bed each morning... I've just got to trust the doctors, the process, my body and God.




Comments
I love you booboo. Glad you rested tonight.
Posted by: Fofo | June 27, 2006 11:27 PM
I regret that I haven't stopped by here for at least a month. Now this...
I'll be anxious to read how you go about this. Already, it's quite a positive journey, despite your circumstances.
Best wishes to you.
PS: Sorry, but I already donate to Bob Carr's 150 ride in N. Texas.
Posted by: Paul N. | June 28, 2006 06:59 AM
Hiya, I'm Mary's daughter, she sent me the link to your website so I could connect to the MSRide website. Just wanted to say hi from London & I hope the MRI tomorrow goes well - I completely agree about wanting some sort of plan, even if I don't always keep to it at least I have something to keep me grounded & in line! Good Luck & I hope you're feeling a wee bit more energetic soon. - Sara
Posted by: Sara | June 28, 2006 02:54 PM
I've been out of touch this week. Sorry. I heard about your most recent news from daughter, Sara, in London. Pretty pathetic. Despite all, you seem to have kept your sense of humor. Take care. MaryO
Posted by: maryo | July 1, 2006 08:13 AM