« Too. Damn. Hot. | Main | Getting Back to Normal »

Brain/Body Drain

Today was one of those days where I've just been completely wiped out, all. day. I've been waking up around 7 or 7:30 every morning feeling happy and rested and that has generally lasted until I've gotten to the hospital for my IV treatments. After that the energy level drops and I feel a bit woozy. But by later in the afternoon I'm starting to perk up again and feel a bit better.

Not so, today. When I got up this morning I felt pretty good, but that quickly faded as the morning wore on and by the time I got into my car I felt like I'd been run over by a semi-truck. Charming. I did manage to drive to the hospital and get my last treatment, but I did basically nothing while I was there but drink Sierra Mist and try to ignore the nasty taste in my mouth from the steroid. Also, I might have dreamed this, but I swear I heard someone watching Mister Rogers' Neighborhood in another room. I'm sure I saw no children in the place when I came in, but I'm not even going to try to explain that one.

Anyway, I got home around 2:30, did a little bit of work and a couple loads of laundry and then just crashed. Fran came by for a bit and we had those yummy Marie Callendar's Chicken Pot Pies and chatted for a bit. Still, I ended up skipping one of my favorite meetings because I just could not even get up the energy to drag myself to the car.

I am just So. TIRED. I don't even know how to begin to explain it. I swear, the balance issues, the numbness and tingling and the frustration at the slow recovery process is nothing compared to this fatigue. I hope this is something that I don't have to deal with often!!

Despite the disappointment at missing one of my favorite meetings, I'm still feeling generally upbeat and trying to remain positive. I'm not looking forward to the MRI on Thursday but I am looking forward to meeting with my doctor again and mapping out a course of action. I've always been better-able to cope - with anything, really - when I've had a plan. I don't expect this piece of my life to be any different.

It's just awfully hard to create and execute on a plan when you don't know if you're going to have the energy to get out of bed each morning... I've just got to trust the doctors, the process, my body and God.

Comments

I love you booboo. Glad you rested tonight.

I regret that I haven't stopped by here for at least a month. Now this...

I'll be anxious to read how you go about this. Already, it's quite a positive journey, despite your circumstances.

Best wishes to you.

PS: Sorry, but I already donate to Bob Carr's 150 ride in N. Texas.

Hiya, I'm Mary's daughter, she sent me the link to your website so I could connect to the MSRide website. Just wanted to say hi from London & I hope the MRI tomorrow goes well - I completely agree about wanting some sort of plan, even if I don't always keep to it at least I have something to keep me grounded & in line! Good Luck & I hope you're feeling a wee bit more energetic soon. - Sara

I've been out of touch this week. Sorry. I heard about your most recent news from daughter, Sara, in London. Pretty pathetic. Despite all, you seem to have kept your sense of humor. Take care. MaryO


"I could have me a million more friends, and all I'd have to lose is my point of view."

~John Prine

My Multiple Sclerosis Diagnosis

On June 23, 2006, I was diagnosed with Multiple Sclerosis. Among other topics, this blog is devoted to my ongoing experience with the disease.

Pharmaceuticals

Shortly after my MS diagnosis, I began taking Avonex. Although I managed to mitigate the "flu-like" side effects, for the most part, the drug unfortunately seemed to exacerbate my clinical depression.

So, on July 19, 2007 I switched to Copaxone.The Copaxone worked quite well for a couple months - except for some minor issues with injection-site reactions - and I felt much better.

Unfortunately, the Copaxone also exacerbated my depression. So I met with my psychiatrist to find a mix of anti-depressants that would counteract the debilitating depression I experienced. After spending most of December 2007 in a complete funk and - some days - being totally unable to leave the house, I finally stopped taking the Copaxone on my own. I immediately began to feel better and with some help from my primary care doc - who discovered I also had a mild case of hypothyroidism - I started to feel like myself again.

On May 16, 2008, I had my first infusion of Tysabri. With the exception of some anxiety issues, I've had no trouble with it so far. Still, it's early and the jury is still out... stay tuned for ongoing updates!

MS Blogs & Websites

Portland and Northwest-area MS Resources

MS Resources



Subscribe!





Search

Creative Commons License
This weblog is licensed under a Creative Commons License.
Powered by
Movable Type 3.2

Powered by FeedBurner